Albinism, a rare hereditary disorder characterized by a lack of pigmentation in the skin, eyes, and hair, gives patients a distinct and immediately identifiable appearance.
It is highly astounding to learn that a Kazakh couple conquered the odds not once but twice when they welcomed two albino children into their lives, despite a 12-year age difference. The birth of an albino kid is sporadic, making their story remarkable.
Let me introduce you to Asel and Kamila, two polar opposite twins who have not only accepted their condition but have risen to popularity as sought-after models. Asel, the eldest sibling, has reached the age of 14, underscoring the journey’s endurance and significance.
Aiman Sarkitova, Asel and Kamila’s mother reflected on her experience, expressing her shock when Asel was born with albinism. She recalls with fondness a time when our understanding of genetics was not as advanced as it is now.
“During the birth of my first child, the realm of genetics was still in its infancy for us,” Aiman said. The unusual nature of the scene that was playing out in front of them surprised the attending doctors. We were only scratching the surface, and it is simply amazing to see how far we have come since then.”
Their surprise was compounded when Kamila, who had the same issue, came 12 years later. The arrival of Kamila came as a surprise for the family, reinforcing their incredible journey even further.
Standing side by side, the two siblings make an engaging and aesthetically distinctive presence, which leads them to join a modeling team.
Asel began modeling at the age of ten, but her stardom surged after the arrival of her two-year-old sister. They have garnered a sizable Instagram following of over 33,000 people.
While albinism has undoubtedly contributed to their success, it is vital to note that their road has not been without difficulties. Photosensitivity is one of the most common problems linked to this illness.
“If I go outside in the afternoon, I always wear sunscreen, protective clothing that shields my skin, headgear, or even carry an umbrella,” Asel noted.
Fortunately, Asel and Kamila will always have each other for support, no matter what life throws at them. Albinos frequently feel alone owing to the rarity of their condition, but these two sisters are fortunate to have a cousin who understands their unusual situation.
This bond reinforces their friendship and gives them a level of understanding and companionship beyond mere familial ties. Ideally, their success as models will not only boost their careers but also catalyze the spreading of awareness about albinism and highlight the incredible beauty that people with albinism possess.
“Asel explained, ‘Many people are unaware of what albinos truly are.’” Asel’s statement demonstrates the widespread lack of understanding and awareness about albinism.
However, Asel and Kamila are actively attempting to change misconceptions and educate others about their disease through their modeling pursuits and increased visibility.
Their story is an inspiration and a reminder that beauty has no bounds and that albinism, rather than being a constraint, may be a unique and awe-inspiring quality.
Finally, the history of this Kazakh family exemplifies the strength of resilience, the beauty of diversity, and the great love shared by siblings. The birth of two albino children separated by 12 years has captivated and fascinated many people.
